Piil, K., et al., Daily Life Experiences of Patients With a High-Grade Glioma and Their Caregivers: A Longitudinal Exploration of Rehabilitation and Supportive Care Needs. J Neurosci Nurs, 2015; Halkett, G.K., et al., Distress and psychological morbidity do not reduce over time in carers of patients with high-grade glioma. Support Care Cancer, 2017.; Philip, J., et al., Mapping the nature of distress raised by patients with high-grade glioma and their family caregivers: a descriptive longitudinal study. Neurooncol Pract, 2020; Reinert, C., et al., Single-institution cross-sectional study to evaluate need for information and need for referral to psychooncology care in association with depression in brain tumor patients and their family caregivers. BMC Psychol, 2020. (Accessed September, 2020).
Learn more about this
Mark Hughes Foundation Funded Project
“When I was first diagnosed with brain cancer my family were always there for me,” says MHF co-Founder Mark Hughes. “But who was there for them?” Mark asks.
When someone is diagnosed with brain cancer, it will have a big impact on the people closest to them. The goal of this project was to ensure that friends and family members have the resources and support they need. We spoke with the Australian brain cancer community to understand their experiences and what support they would like to see online.
CarerWell is an online website and program for brain cancer supporters, no matter where they are on their journey. Access it anytime, anywhere in Australia.